Tag: mental illness

The concept of health in a broken world

I’m in this endless pursuit of this mythical idea of health, and I’m not even sure what that means.  I picture myself hanging by my legs upside down from a 20ft tall geodome as a teenager with no fear of falling, of my body when I was a dancer and could see the muscles beneath my skin.  I picture being able to climb a tree without a second thought.  But what I don’t picture is how much time I had back then, how I climbed that geodome during a summer where I worked and played outside all day every day.  How I was a dancer in high school where walking home from school, between classes, to the metro to go hang out with friends, was the norm.  How I had time every day once school was over to do 200 cruches each morning and night, and how there was really no stress constantly looming because fuck ups were inconsequential and slipped off the glassy surface of my mind without leaving large jarring scratches.  When I climbed trees with no second thought I was carefree, and time outdoors was plentiful, weekends were jaunts in the woods full of energy that didn’t require caffeine or a sugar high.  My ideas of health are all colored by the backdrop of childhood, lack of stress, abundance of free time, everything falling into place with no schedule.  My ideas of health are colored by an absence of trauma responses and chronic pain.  My ideas of health neglect to remember that half the time I was obsessed with numbers on a scale and numbers of calories burned and eating less then 200 calories a day when I could get away with it.  My ideas of health forget the years where I could go the five days in the school week subsisting on mountain dew and nothing else, and the weekend living on two taco hell burritos and feeling like that was too much.

I want the energy and exhilaration I had in childhood.  I hit puberty so early, so I was this tall and at my healthy adult weight by the time I was a teenager, even a little bit before.  So my whole idea of what this shaped body I have now should be able to do, is based on a concept of a thirteen year old with no cares in the world.  When I try and imagine fitness at this age, I can only picture the lean muscular elderly folk I see running the trails at the park.  They’re in their seventies and eighties and probably in better shape then I’ve been in for over a decade.  I think about the ideal of mental health.  I don’t know anyone mentally healthy.  My generation is all people who are traumatized and fucked up beyond belief because we give voice to the problems of the world and they weigh on us like bricks.  How can you be mentally healthy when watching the rise of fascism and the death of your peers for loving a different gender then expected or being a different gender then expected?  How can you be mentally healthy when you see the earth that you want to reach to for sustenance, becoming a ticking time bomb counting down to the extinction of your species, because of the greed of corporations and the wealthy few in power?  For that matter, how can you be physically healthy when there are another hundred cleanses and fad diets birthed each day?  When you are constantly told that health looks like photoshop lies, and comes from on of the thousand one true ways to decrease in size that is marketed violently and splashed all over any physical or virtual environment you step into?

So I wish I had a conclusion to this, but I’m not there yet.  I’m just at the -the world is fucked and my brain is too, but I need to get to a better healthier place, and that’s hard and I have no idea how, but I’m gunna do it anyway- point.  I do hope to offer more insight if I get there though.

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Manic starving daydreams

The tight grip on my chest

making breathing laborious

accents the cold that seeps in past layers

cutting icy knives into my skin

its a manic high of being alive

the winter sun too bright

my bones to shallow beneath my skin

a cigarette breakfast for company

I remember those feelings wistfully

with full knowledge I shouldn’t

for I was lean grace and agony

starving away my flesh and soul

Some days I tiptoe back

towards that heady precipice

the sky rush of empty caverns inside

and dizzy days of fierce tortured accomplishment

Its hard to fight off the courtship

with death and self consumption

when you feel most alive when starving

the closer to death the more bright the colors

Each day a forced resolution

to find a healthier happiness

each day convincing the self

we won’t go back, we’ve chosen to live

 

To succeed, you have to do it for yourself…or do you?

“To really succeed, you need to do it for yourself, not for someone else”

I can’t remember the first time I heard this message, but it’s something repeated often, and for many different circumstances. I hear this especially when it comes to mental health or addiction.  When you decide to get sober, it is a choice you have to make for yourself, not one that you can be doing to please others.  If you’re doing it for other people, you’ll inevitably fail.  When you seek treatment for mental health, it has to come from finally acknowledging your problems yourself and loving yourself, not from wanting to please others. If you’re doing it for other people, you’ll fail.  Does this narrative sound familiar?  It should, it’s fucking everywhere.  It’s also utter bullshit.

When I tried to stop drinking, I had deeply internalized this message.  I tried to stop for myself, or I said I did, but I also tried to stop to save my relationship.  My ex-fiance had cheated on me, had been cheating on me for months by the time I found out, and I knew that part of it was because I had been such a shitty partner.  The responsibility for his actions is still on him, but he was looking for love from someone who was compatible and healthy for him, and I was not that.  I gave myself the challenge of going from drinking around 12-20 beers a night, something I had been doing consistently for about three years, to going 100 days sober.  I did it, and our relationship still fell apart.  He cheered me on, but was still cheating on me the whole time while claiming not to be.  I backslid some then, after making it my first hundred days.  I tried to transition into drinking in moderation, and I was not ready for it, and the circumstances were poor since I was getting out of a six year relationship with someone I had been engaged to, that had ended with betrayal.  So doesn’t that prove the point that you have to do it for yourself, and if you do it for someone else you’ll fail?  Fucking nope.  It does show me that doing it to try and save a relationship that was already failing and beyond saving, without even evaluating if that relationship was healthy for me (it wasn’t), was a mistake.

So I kept working at moderation, and at times I took another 30 days or 100 days of sobriety.  Ex-fiance moved out, I started school, life continued.  I told myself over and over that I had to stop drinking for myself, it had to be for me, or I would continue failing.  I came out and began transitioning, I worked hard on getting a degree, I really started to love myself with a depth I haven’t known before.  I still struggled with moderation and sobriety.  I did the work for myself, because I truly wanted to be better, and for some people that is enough, for me in this instance it didn’t work.  I got an okay handle on things though, over the next three years I went from the daily 12-20 beers from before the first time I tried sobriety, to drinking just on weekends, then to drinking once a month, then to drinking every few months.  I still felt weak, like I was fucking up, like I couldn’t do it.  I was doing it just for myself and I was feeling like a failure.

One of those times when I drank, I broke the other rule I had for myself, even when I had been a constant alcoholic.  I had made a no hard liquor rule at the beginning because I saw how much I was beginning to drink, and I knew I’d be dead within a year of accidental alcohol poisoning if I didn’t set myself that limit.  Well, this one time, a few years into moderating, I went to a barbecue with Kelev and had hard liquor, and much too much to drink.  I made a complete ass of myself, I was rude to Kelev, I needed help getting into the car so he could drive me home, I was just a complete shitbird that night.  The immensity of how badly I’d fucked up hit me like a ton of bricks the next day and I realized that while Kelev had been an ever patient and supportive loving force, and extremely understanding because he had a history with alcoholism as well, that it might be a matter of time until he said enough and left.  Even if he didn’t, what I was doing was hurting him, directly on nights like that when I was a rude fucknob, and indirectly as he watched me hurt myself.

When I decided to take a full year of sobriety, I did it for him.  I did it because I didn’t want to fuck up the best relationship I’d ever been in, I did it because I didn’t want to hurt him with my behavior, and I did it most of all because I wanted to make him proud.  And you know what, it worked.  I made it a year sober, and so many times he would glow with pride and tell me how amazing my efforts were, and that was what I needed to keep pushing through.  I got out the other side, and every previous time after I had hit a goal like that, I would go back to drinking after.  Less each time, I had gotten to a point of moderation where usually I only drank every few months, and rarely too much like I did at that barbecue. But there was still always that relief of my sobriety stretch being over, and I celebrated with a drink.  This time I had no desire to.  I had him by my side telling me how he was so proud I’d actually made it, and I felt better then I had in so many years.  I still haven’t drank since then, and I may eventually decide I can handle moderation someday, but I’ve had no interest in that day coming anytime soon. I had decided to throw away the notion that I had to do it for myself.  Instead I had to find -a reason- important enough for me, and do it for that.  I found that, and that is what mattered, having a driving force that could support me through the hardest moments and push me forward.

Yesterday I was talking to my partner D, and she was telling me how her other partner, the Brit, had taken an important step forward for his health.  How he had done so without her prompting, but because he wanted her to be proud of him.  She said how she wished he had done it for himself.  It reminded me of my experiences, and of the trope we buy into that we have to do things for ourselves for them to work, or to be healthy, or to love ourselves.  Sometimes when it comes to physical and mental health, one of the biggest barriers is not loving yourself.  Low self esteem and self regard can really hold people back in seeking help.  Apathy or self destructiveness can feed into the most unhealthy behaviors.  That is where the trope that you have to do something for yourself becomes harmful, it can hold someone back from seeking help because they can’t muster up enough love for themselves alone, or desire to exist, to push forward.

It is okay to get help because of external motivation.  If you are doing something that is good for you, because you want to make someone else proud, or for any other external reason, you are still doing something good for you.  That is important, that is valid, and it still pushes you forward.  In fact, that is still even a form of self love.  When you decide to take care of yourself because you want to make someone else proud, you are still doing so because you enjoy the feeling of them being proud of you.  You are still on some level seeking out a good feeling, and that is loving yourself enough even just a little, to seek something you enjoy.  Even if you only are getting joy from the happiness of someone who loves you, you are letting them love you and take pride in you, and that is an act of loving yourself.  From there you can move on to acknowledging that you deserve that love, as you succeed for them you can build yourself up and build confidence in believing that you may actually be worthy of that support because you are succeeding in what you are doing.  This isn’t just that the ends justify the means, but that in trying to improve for other people, you often create a healthy cycle that feeds your healing.

Of course there are situations like I had with my ex-fiance, where I was trying to improve to save something that was unhealthy for me and not worth saving.  But even then, if I had not started on my journey at that point, I may never have continued pushing until I found a reason that was strong enough to bring me through this, and I might not be where I am today.  So when you decide to make a big change for yourself, when you are facing a struggle and looking for a reason to improve, let go of the toxic trope that the only reason that will work is an internal one.  Let go of the idea that you must do everything for you and you alone, and that is must come from this already existing place of loving yourself.  Loving yourself may help a whole heck of a lot, but it is okay to seek external motivation as well.  What matters is finding reasons that are healthy enough and good enough for you, that are strong enough to pull you through the hard times.  If you foster love for yourself to start and let that drive you, it might be easier at times, or it might not be enough.  If you find the strongest reason you can and run with it though, the self love will likely come in time.  And you can succeed, don’t be afraid to lean on others for support and to seek validation and encouragement.  That is just as good of a reason and you will see that when you reach your goals.

Puzzling out the need to help at all costs

If you ask me for help with something, I’m likely to go out of my way to provide it.  At times this means putting my own needs aside, even when they are more pressing, or trying to be there for almost complete strangers to the extent that is expected for close friends.  I’ve been examining this in recent years and trying to puzzle out why this is such a driving need for me.

I think one aspect of it is rooted in the fact that I’m not someone who typically asks for help.  I struggle through trying to find every way I can to deal with a problem on my own before I ask for assistance.  Or I don’t, I leave something unsolved rather then admitting I need a helping hand. If I were one of the seven deadly sins, I would be pride. So, when someone comes to me for help, I see them making a sacrifice even in the act of asking.  Maybe they aren’t as obstinate and prideful as I am, maybe for them it isn’t hard to reasonably reach out for a helping hand when they need that.  But I don’t know that, and I liken it to my own experiences and don’t want to let someone down if they struggled intensely to even reach that moment of asking.

Another aspect is that I do derive a lot of joy and purpose from helping others.  I’ve always felt most comfortable in tight knit community settings, where I feel connected with a group that works together for our mutual benefit and shared closeness.  When I help someone else, I feel I am helping myself, because I truly get a deep satisfaction by seeing others succeed and flourish.  And often those people are the ones I’m close to, and their well being does directly impact mine.

I think the factor I’ve noticed the most though, relates to my experience with mental illness.  I questionably have ADHD, I’ve been given the diagnosis, but that was many years ago and I question if I have the associated traits at this time.  At times though, focus is hard and executive dysfunction makes doing the do quite impossible.  I also have bi-polar disorder, PTSD, and anxiety.  These days I’m starting to add chronic pain to the list, though I haven’t sought out a doctor to determine the cause of the constant back and joint pain I’ve been experiencing increasingly for a year or so.  It all culminates in being very low on spoons most days, and having an inability to do basic things, a fact I beat myself up for.  I am not pleased when I’m anything less than extremely productive, so when my anxiety can’t handle asking an associate where something is at a store, or my chronic pain makes me put off cleaning for another day, I feel like a bit of a fuck up.  I know that’s not the case, I would never think that of someone else, but it’s easier to be hard on yourself I suppose.  But, here is the thing.  When it comes to most of these issues, there is a magic little switch in my mind that flips on when someone else asks for help.  I may be on the verge of a panic attack thinking about asking generic Target Comrade where the decorative soap dispensers are, but if a friend I’m with need to ask for something and is too anxious there’s a little click.  They need me to do a thing, the switch is flipped, and I’m marching right up there to make sure I ask, and do it damn well, and figure out exactly where the singing unicorn photo frame my friend desperately needs is kept.  I can brain hack past most of my mental illness as soon as I’m doing it for other people.

This happens to me with Kelev a lot.  We share many of the same diagnosis, PTSD, bi-polar, anxiety.  Neither of us is a completely functional human, though we both manage to survive alright on our own if need be.  Sometimes though, he just can’t manage the facade of being okay some days.  If I’m in a fucked up headspace and trying hard to direct myself towards thoughts of sushi and glitter but instead keep dwelling on how lovely it would feel to run my car off a bridge, and then suddenly I become aware that he isn’t doing okay, the switch is flipped.  I’m not focused on my suicidal ideation  or existential dread anymore, I’m focused on what I can do to make his day a little brighter and my problems just float away.  And since most of my issues aren’t actually based on any real life problem, but just my brain meat deciding that life is awesome so we’re gunna have a shitty time anyway, often those consuming thoughts has dissipated entirely by the time I come back to them later.  I don’t know where the switch came from or why it is there, but I know that if I feel someone needs me, I am able to do things and handle things that are well beyond my capacity to do on my own, hard as I may try.  So I like that, it makes me feel a bit like a superhero, because I’m performing feats that are just simply beyond my best efforts on a normal day.  And if I can ease someone else’s burden a little bit, I’ll feel the day was worthwhile.

So, I like to help.  I like being asked, I consider it an honor with how hard even that act can be.  I like feeling purposeful and seeing the improvement in the lives of those around me if I can assist them.  And I like that while I may be a slightly broken worn out human specimen, I can shut that off for a little while and wear the cape of Captain Assistance for as long as it takes until everyone else is okay.  One day I’ll figure out if this all is healthy for me, but for now, it feels good and it’s useful, and that’s all I can ask.

 

Progress matters more than perfection

Today I am scatterbrained.  I’ve worked on adding a little here and there to some writings I am working on, but I can’t seem to focus on and complete any one piece.  I have to remind myself at times that completion or perfection is not the end go.  The process is what matters.

Yesterday I was cleaning my house with one of my housemates, Raichu.  I was explaining how hard it is for me to clean at times.  I get very focused on everything being perfect.  I was sweeping the floor of the living room and talking about how frustrating it was for me that I had the spoons to sweep, and even then to do a bunch more cleaning tasks afterwards, but did not have the spoons to move all the furniture when sweeping, so it felt like I was doing nothing because I was not in my mind doing the job completely.  They said “It’s okay, moving everything can be a few times a year thing, our house does not need to be perfect and a lived in house in more cozy anyway.  You can do just a little bit of something and even if it doesn’t look done or perfect, it is cleaner then it was when you started.”

Well damn.  I’ve heard this all before, I’ve said this all before, but it still made a bit of tightness in my chest go away and made me breath a small sigh of relief to hear them say it.  I’m not sure why my brain clings to the idea that only perfection is good enough.  Not true perfection, but that feeling of done-ness when I know I’ve done the best I absolutely can, and I don’t see any imperfections left in my cleaning job that I could conceivably fix in a reasonable amount of time.  The problem is, that idea of -having done the best I can- is based on me on my best days.  I’m not often having my best days.  I’m a well put together hot mess, and focus, motivation, energy, these are all often a huge struggle for me.

I finished sweeping the living room without moving anything.  The floor still looked dirty to me, I didn’t have the spoons to mop and the living room is the dogs’ room, so there are dirty paw prints on the floor and dog fur sticking out from under the dog crates that I couldn’t get without moving them.  It is not just far from perfect, but it may be far from most people’s basic definition of clean.  I think about how the room with a couch, a well organized bookshelf, a somewhat organized cabinet, the two dog crates, a large floor rug, a dog bed in the corner, and a few toys and water dishes, is so much less cluttered and so much more clean than it was four or five years prior.  Five years ago when I began de-cluttering and re-claiming my life from a constant alcohol induced stupor, the living room I have now would have looked fantastic to me on it’s dirtiest days.  When I began that journey of self improvement and sunk much of that into improving my environment as well, I also became hard on myself in demanding perfection. Because if I let myself slide with personal perfection I ended up a shitty person, so I demanded perfection from my environment as well or else I was just -not good enough-.

The people in my life are teaching me to let go of that.  I got up a good pile of dog fur and dirt and cat litter with my sweeping to dump in the bin.  I also wiped down counters and the table, took up the clutter sitting around the kitchen and dining room, washed and folded three loads of laundry, cleaned the toilet, sink, and tub, and helped change a light bulb that has been out since a couple months after we moved in (so about six years).  Nothing I did was quite up to my standards, but all of it was good.  And at some point I have to accept that, that means I did good, and I can be proud of myself.

He is my hero – on having a partner with disabilities

When I first got involved with someone fifteen years my senior, a smoker, an alcoholic, with a history of mental disorders, I wasn’t really thinking about how health would effect our lives.  The deeper I fell in love with him, the more my crippling fear of loss made me worry about losing him, because statistically I knew that based on age alone he was likely to die before me.  I knew that you can never really know with life though, you can be two people in perfect health and in your prime, and lose someone to a car accident or mass shooting.  Life is never certain, and I dealt with my fears as best I could, though every day the thought of living without him someday haunts me and I hope that day never comes.  What I didn’t consider though was what happens along the way, how health is a fickle thing and can deteriorate in ways you don’t expect.

It’s eight years after we met and fell in love. I sit on a stool that gives a little when I move, and subdue the urge to bounce and swivel back and forth with the manic energy that so often inhabits my body.  I watch him lying flat on his back, straining to lift his leg up off that table at the physical therapists office.  One leg lift is a hard won feat, the ten that are asked of him make his face crease with intense pain and determination and he is breathing hard when he finishes the final one.  They say the cartilage in his knees is just gone, I know this means that despite the exercises, this new knee pain is now one more constant in his life.  We can tally it up with the back pain, the leg pain, the carpal tunnel, the constant headaches, the tremors, the memory loss and blackouts, and all the fucked up mental states that come and go. I think about how I’m starting to get pangs of pain here and there, my knees aching and cracking from time to time from a few years at jobs where I knelt on concrete while restraining large dogs as a vet tech.  I have a bit of a headache, probably didn’t drink enough water this morning, and that is enough to distract me and throw me off my game for the day.  I can’t imagine pain that is exponentially worst, being a constant background noise in my life.  This is the one area in which we don’t understand each other perfectly, because I have no frame of reference.

When I found out he was bi-polar I wasn’t phased.  We grew closer because of it, having the same condition and realizing how easy it was to relate to the spiraling mood shifts that could last months or years and change the color of the whole world for that time.  When I talked him past a period of suicidal ideation not long after we first met, I could see myself in him, I’d walked that path too many times on my own.  I wanted him to see he didn’t need to walk it alone, I committed to always be there through that.  As we grew close we revealed shattered pasts of trauma and abuse, our stories profoundly different, but our understanding of the invisible scars we each had was the same.  He overcame his alcoholism within the first six months after we met, mine persisted for a few years longer before I decided it was time, and with his borrowed strength I came out the other side.  We had our difficulties where mental health played a role, but there was always an undercurrent of empathy, understanding, and kinship.  I never doubted we could handle any of those curve balls that life threw at us, capricious manic moods, depressive spells, unexpected trauma triggers, we could take it.

The first time I got a call from his doctor at school to let me know they had sent him to the hospital, suspecting a heart attack, my world dropped away.  My fears of losing him went from background noise to a constant cacophony that disrupted every day functioning.  After a time it receded again to a background murmur, but always louder then it had been prior. It wasn’t a heart attack that time, although if it had been it would not have been his first.  Doctors, an ever growing list of medications, and a longer list of diagnoses, followed over the years.  This month we add a rheumatologist, we’ll have to figure out where they fit in with the neurologist, psychiatrist, urologist, cardiologist, endocrinologist, pulmonologist, and any others we’ve seen over the years or are now a constant part of life.  Assistive devices became normal, the glasses after the stroke in his left eye, the cane when his balance got worse, the handicap placard when the constant back and leg pain made walking long distances prohibitive.  When we met, we had more in common in our respective illnesses of the mental persuasion, but as more physical disabilities have entered his life in a steady march, I can’t relate to what he goes through because I have no lived experience to match.

He brings me flowers.  Going to the store is never easy, not with the panic attacks from being out around a lot of strangers, the pain with walking, the shortness of breath, the constant exhaustion.  I can’t function with a mild headache, his daily background is so much more then I think I could ever handle, and he bears it to bring me flowers just to see me smile.  He plays with his nephew, wrestling around knowing that it will cost him, that it means days of increased pain and less ability to devote the little energy he has to doing the few things that keep him sane.  He does it because he always puts others first and loves to bring them joy.  He sees himself as selfish because of how he withdraws when it all gets to be too much, and I see the selflessness in every time he pushes his body a little too far just to make someone else smile, knowing he’ll pay for it for days.

I go into nursing.  I love my job working with animals, but human medicine pays more and I know that I’ll be the one supporting us, and maybe I can learn skills that will help me better take care of him.  I try and help him advocate for his boundaries with me, to learn after a lifetime of short relationships with poor communication how to say no and express when something is too much.  I offer comfort, knowing I can’t take away all the pain, but wishing desperately that I could, and instead giving the little bit I can that barely makes a dent in it all. Our polycule is there, always understanding, always asking what they can do to make his life easier.  They are a constant source of compassion when he isn’t able to make a birthday because the pain is too great or the mental fog won’t clear that day.  My parents treat him like family, never commenting on me choosing someone so much older or with so many problems, but cheering him on as he fights the system for years to get disability.  With my own history of trauma, I am amazed at the love and empathy and support that is a stable source of comfort, so grateful for such wonderful people in our lives.

I sit there watching him struggle to lift his leg at the physical therapist, the pain creasing his face.  The laugh lines at the corners of his eyes that crinkle up when he smiles, a feature he hates because it shows his age but I love because it shows how much of his time is spent flashing that brilliant smile and laughing his laugh that lights up the room; those are lines of pain in this moment as he pushes through the exercise.  My manic fidgety energy calms for a moment and all I can think is how he is my hero.  I’ve been the stable one, the one who supports us, who guides us through the problems we’ve faced, but I’m not the strong one.  I know he breaks down and cries because he feels so weak.  I wish he could see himself through my eyes.  He is the man who brings me flowers, who plays with his nephew, who shares his most vulnerable moments of trauma, who inspired me into a career path I am now passionate about, who taught me a level of compassion I didn’t know possible, who makes me feel safe, and who has the strength to handle pain and adversity that many would crumble under.  He is the man I fear losing more then anything else because I can’t see a world without him.  I didn’t know what I would be getting into eight years ago when we met, and I also didn’t know heroes existed back then, but now I know they do, and I would never trade the time I share with mine for anything in the world.